I am NOT a member of NORD and I am not claiming to be collecting money on their behalf. Please read the entire article! Thanks! 🙂
I’m trying to gather funds so that I can attend the National Organization for Rare Disorders, Inc. (NORD) Rare Patients Forum this year in Cleveland, OH. A lot of you are already aware that I am an advocate for rare disease patients, and I have been focusing more and more of my time and energy on increasing my efforts to support the rare disease community. I would like to attend this conference so that I can learn more about advocacy work and make more connections with other advocates which will enable me to do even more in the future.
If you would like to donate to help me attend the conference so that I can report back to you and share what I learn there, please donate via this link so that we can all keep track of our progress towards the fundraiser goal:
Donations are very much appreciated. If something comes up and I am unable to attend the conference, all the money donated to help me attend the event will be given directly to NORD. I will personally make up for the loss incurred due to fees taken by the money transfer services, assuming it’s not a ridiculously large amount, which I HIGHLY doubt is going to happen. I will post proof of the donation if I can not attend the event so that you all know I have kept my word.
Obviously, if I do get to attend the conference, I will be sharing plenty of video and photo proof of my attendance. I am so excited to go, and I hope I am able to make it!
Thank you for your time and consideration!
Learn all about this conference here:
Want to catch me live on one of my Twitch streams? Follow my channel here and enable notifications to be alerted the next time I go live!
UPDATE: At the time I recorded this video, I had been given a quote of nearly $800 for the hotel reservation. Since then, I have booked my reservation, and the total cost is only $600 for my stay. Still expensive, but not as much as I had been previously told. Just wanted to correct that. The fundraiser still remains the same. Thanks!