I have two rare congenital conditions, “Panhypopituitarism” and “Optic Nerve Hypoplasia” (also called Septo Optic Dysplasia). Because of these conditions, I have difficulties with fatigue, illness, and a battery of nasty symptoms and side effects from the medications I have to take in order to survive. Thanks to ONH, my eyesight is crap as well (and yes that does make being an artist a bit of a challenge at times, but I have learned to deal with it.). Because of all of these issues working together against me, I’ve had a bit of a rough time. Despite all that, I still manage to stay pretty positive, and I like to reach out and help others who have this condition cope as well.
I want people with my condition (and any other invisible illnesses) to know that they are not alone in their struggles. These are my experiences, and I hope you will share yours with me as well! I would love to make this blog a forum for other #spoonies like myself so we can show just how strong we really are! ♡