I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories similar to my own where this has happened, and in … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
I think I might be making some serious changes to my website here soon. I still want to educate people on my rare conditions, but I really don't want that to be my main focus. I am a lot more than my diagnoses, and I don't think my site has been reflecting that well. I … Continue reading More content on the horizon!
According to Reuters, the Trump administration is going to allow states to implement work requirements for Medicaid recipients. I live in Indiana, one of the states considering implementing the work requirement. I know this can be a complicated issue, so please allow me to explain why this is a bad idea. I know that most … Continue reading Medicaid Work Requirements Incoming
I have an idea for a browser-based spoonie flash game. I'm going to lean how to use Adobe Animate to make it, and I have a basic concept for the game, but I would really love to get some feedback and suggestions from my fellow spoonies. The point of this game is to help people … Continue reading Spoonie flash game idea! (updated 1/11)
I don't normally do this on my blog, but for this particular subject, I will add a content warning: - infertility - suicidal thoughts - societal gender roles If these topics are triggering to you, please do not read this article. I decided to write this after watching this wonderful TED Talk. Please take … Continue reading “SO, when are you going to have kids?”
Support groups on social media can be an important source of comfort when you are living with a chronic health condition that affects your life in ways that normally healthy people might not be able to understand. When you are able to find a community of people who share your frustrations and offer helpful advice … Continue reading We need to stop comparing our hardships.
Chronic invisible illness can be a major pain in the butt, but some of the hardest parts of having such a condition is the look we get when we admit that our health is poor when we look outwardly healthy. You know what I'm talking about, the furrowed eyebrows, look of shock, the occasional narrowing … Continue reading We need to break the social stigma of chronic invisible illness.