Before I get into this update post, I want to apologize for my absence. My health took a turn after that adrenal crisis I wrote about in my previous article. It has been difficult to keep on top of things. I did get to go on vacation with my dad for a week, which turned … Continue reading Adrenal Crisis Update
I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
I think I might be making some serious changes to my website here soon. I still want to educate people on my rare conditions, but I really don't want that to be my main focus. I am a lot more than my diagnoses, and I don't think my site has been reflecting that well. I … Continue reading More content on the horizon!
According to Reuters, the Trump administration is going to allow states to implement work requirements for Medicaid recipients. I live in Indiana, one of the states considering implementing the work requirement. I know this can be a complicated issue, so please allow me to explain why this is a bad idea. I know that most … Continue reading Medicaid Work Requirements Incoming
I have an idea for a browser-based spoonie flash game. I'm going to lean how to use Adobe Animate to make it, and I have a basic concept for the game, but I would really love to get some feedback and suggestions from my fellow spoonies. The point of this game is to help people … Continue reading Spoonie flash game idea! (updated 1/11)
I don't normally do this on my blog, but for this particular subject, I will add a content warning: - infertility - suicidal thoughts - societal gender roles If these topics are triggering to you, please do not read this article. I decided to write this after watching this wonderful TED Talk. Please take … Continue reading “SO, when are you going to have kids?”
Support groups on social media can be an important source of comfort when you are living with a chronic health condition that affects your life in ways that normally healthy people might not be able to understand. When you are able to find a community of people who share your frustrations and offer helpful advice … Continue reading We need to stop comparing our hardships.