I’m sad to report that a fellow adrenal insufficiency patient has died recently due to inadequate care from hospital staff who did not immediately administer the stress dose steroids her body needed. Her death never would have occurred if they had administered the steroids IMMEDIATELY. Instead, they insisted on making her wait while they ran … Continue reading Another Adrenal Insufficiency patient has died from inadequate care.
Author: insomniadoodles
One Gamer Fund – Charity Stream Announcement
This Friday, I will be hosting a stream to promote the One Gamer Fund (OGF) charity, which is raising money in order to support organizations that make gaming a better experience for all in a multitude of different ways, including broadening accessibility and inclusivity for ALL gamers. Here are some of the charities which the … Continue reading One Gamer Fund – Charity Stream Announcement
#RareCancerDay 2019 Roundup
October 1st 2019 was the first annual Rare Cancer Day event promoted by the National Organization of Rare Disorders (NORD). With their permission and enthusiastic support, I was permitted to rebroadcast their webinar and share stories of patients living with a variety of rare cancers. I hosted an awareness stream on my Twitch channel which … Continue reading #RareCancerDay 2019 Roundup
#RareCancerDay
Since I’ve been back on GH for a while and have recovered from that acute respiratory illness as well, I am feeling more like myself again! ❤️ Now that I have a little more energy than I have had lately, I am going to get back to doing more advocacy work for rare conditions. October … Continue reading #RareCancerDay
Life updates ahoy! (+”Subtember”)
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
Letter to Greg Pence
I am writing to you now because I have experienced some distressing hardships due to the Indiana Medicaid office’s poor handling of my healthcare needs.
Birthday success!
Thanks for joining me for the birthday stream! I had an awesome time. There were so many laughs all through the night, I lost track of time and didn't realize until the end that I had streamed for three hours straight! I feel like absolute hell this morning, but it was SOO worth it! ❤ … Continue reading Birthday success!
It’s my birthday!
I'm going to be having a special birthday stream tonight here in just a couple of hours! We'll be going live at around 6pm, hosting JackBox games and having giveaways every half hour! You can enter to win this as a car decal! I'm looking forward to the stream! Hope to see you there! (I … Continue reading It’s my birthday!
Upcoming Rare Disease Awareness Stream
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
Planned Hiatus
I am going to be unplugged from the internet for the next week. Until June 10th, I will not be logging in to any social media services or checking messages. No screens! Audiobooks and podcasts only. Taking a break from the net is always very refreshing and great for my mental health. I'm really looking … Continue reading Planned Hiatus
