In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to … Continue reading How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
Chronic Illness
Attention Parents with Disabilities:
Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing … Continue reading Attention Parents with Disabilities:
It has been an awesome day, and that sucks.
This is a throwback to an older article I wrote, titled "The guilt of feeling well". I wrote that a long while back, yet the topic is still quite relevant to me. Today, I had a really great day, energy-wise. I did so much, and as I sit here writing this, I still feel vital … Continue reading It has been an awesome day, and that sucks.
A quick rundown of my diagnoses / disabilities
Septo-Optic Dysplasia (SOD) Which caused: - Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency - Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision - Absence of Septum Pellucidum Here are … Continue reading A quick rundown of my diagnoses / disabilities
Let’s talk about clinical depression.
CONTENT WARNING; Heads up. I'm about to discuss some heavy stuff in this article, namely disability, depression, and suicidal thoughts. I am not at risk of self harm now, but I'm finally ready to discuss my fight with clinical depression. If you would rather not read about that, this is not the article for you. … Continue reading Let’s talk about clinical depression.
That much anticipated life update
Hello all! Thanks for bearing with me while I found the time to sit down and write this. Luckily for me, I've had some good energy lately here and there. Luckily for this article, I'm currently having a low energy day so it's forcing me to sit down. I'm feeling inspiration to write today, so … Continue reading That much anticipated life update
Ambitions
This is just a short life update. I am still planning on sitting down and writing a post about everything that has been going on with me lately, but that one in particular is going to take a couple of hours to write. Please bear with me until I can find the time! I’m actually … Continue reading Ambitions
Adrenal Crisis Update
Before I get into this update post, I want to apologize for my absence. My health took a turn after that adrenal crisis I wrote about in my previous article. It has been difficult to keep on top of things. I did get to go on vacation with my dad for a week, which turned … Continue reading Adrenal Crisis Update
Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
“SO, when are you going to have kids?”
I don't normally do this on my blog, but for this particular subject, I will add a content warning: - infertility - suicidal thoughts - societal gender roles If these topics are triggering to you, please do not read this article. I decided to write this after watching this wonderful TED Talk. Please take … Continue reading “SO, when are you going to have kids?”
Insomnia Doodles 