Living with secondary adrenal insufficiency is a constant balancing act—between doing what’s right, managing daily responsibilities, and keeping myself healthy enough to stay out of crisis mode. My experience with Mooch highlighted how quickly things can spiral when life throws a curveball. While I don’t regret helping him, it reminded me of the razor-thin margin of stability I often operate within.
adrenal
VR Spoonies Chronic Illness & Disability Support Group Celebrates 3rd Anniversary
Three years ago today, I hosted the very first meeting for what is now a really tight-knit, wonderful community of folks with a wide variety of conditions which impact day-to-day functionality.
Another Adrenal Insufficiency patient has died from inadequate care.
I’m sad to report that a fellow adrenal insufficiency patient has died recently due to inadequate care from hospital staff who did not immediately administer the stress dose steroids her body needed. Her death never would have occurred if they had administered the steroids IMMEDIATELY. Instead, they insisted on making her wait while they ran … Continue reading Another Adrenal Insufficiency patient has died from inadequate care.
Life updates ahoy! (+”Subtember”)
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
Learning to enjoy life with a Disability
I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
Adrenal Insufficiency Awareness Month
Adrenal Insufficiency United has named April as Adrenal Insufficiency Awareness month. In honor of that, I’ll share some facts about my condition, Secondary Adrenal Insufficiency (SAI): 🔹My SAI was caused by my congenital panhypopituitarism. Basically, my pituitary gland does not function sufficiently enough for survival without assistance. This means my Adrenal glands do not receive … Continue reading Adrenal Insufficiency Awareness Month
Why I decided to celebrate winning my disability hearing by going bowling:
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Adrenal Crisis #3
"Buddy, I’m not trying to be better than you at your job. I was just trying not to die."
Setting goals for 2019
It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019
Late Night Confessions
It's going on 11pm. I've been contemplating sleep since 8. Rather than catching some sweet sweet "Z"s however, my mind is fixated on a regret I have, and now I feel the need to write about it so I can get this off my chest. I regret that I never reported one of my ex-bosses … Continue reading Late Night Confessions
Insomnia Doodles 