Living with secondary adrenal insufficiency is a constant balancing act—between doing what’s right, managing daily responsibilities, and keeping myself healthy enough to stay out of crisis mode. My experience with Mooch highlighted how quickly things can spiral when life throws a curveball. While I don’t regret helping him, it reminded me of the razor-thin margin of stability I often operate within.
advocacy
What PE taught me about my Rare Disease
https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact … Continue reading What PE taught me about my Rare Disease
#RareCancerDay 2019 Roundup
October 1st 2019 was the first annual Rare Cancer Day event promoted by the National Organization of Rare Disorders (NORD). With their permission and enthusiastic support, I was permitted to rebroadcast their webinar and share stories of patients living with a variety of rare cancers. I hosted an awareness stream on my Twitch channel which … Continue reading #RareCancerDay 2019 Roundup
Insomnia Doodles 