October 1st 2019 was the first annual Rare Cancer Day event promoted by the National Organization of Rare Disorders (NORD). With their permission and enthusiastic support, I was permitted to rebroadcast their webinar and share stories of patients living with a variety of rare cancers. I hosted an awareness stream on my Twitch channel which … Continue reading #RareCancerDay 2019 Roundup
awareness
Adrenal Insufficiency Awareness Month
Adrenal Insufficiency United has named April as Adrenal Insufficiency Awareness month. In honor of that, I’ll share some facts about my condition, Secondary Adrenal Insufficiency (SAI): 🔹My SAI was caused by my congenital panhypopituitarism. Basically, my pituitary gland does not function sufficiently enough for survival without assistance. This means my Adrenal glands do not receive … Continue reading Adrenal Insufficiency Awareness Month
