Up until about a year or so ago, I didn’t call myself “disabled”. There was a stigma attached to that word that made me uncomfortable, so I avoided it. I think the thing that bothered me most, is I didn’t feel like I was qualified for the term, if that makes any sense. When I … Continue reading I am Disabled
illness
Attention Parents with Disabilities:
Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing … Continue reading Attention Parents with Disabilities:
It has been an awesome day, and that sucks.
This is a throwback to an older article I wrote, titled "The guilt of feeling well". I wrote that a long while back, yet the topic is still quite relevant to me. Today, I had a really great day, energy-wise. I did so much, and as I sit here writing this, I still feel vital … Continue reading It has been an awesome day, and that sucks.
A quick rundown of my diagnoses / disabilities
Septo-Optic Dysplasia (SOD) Which caused: - Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency - Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision - Absence of Septum Pellucidum Here are … Continue reading A quick rundown of my diagnoses / disabilities
“Group Therapy” Streams Coming Soon
I'm going to be hosting a weekly "group therapy" stream on my Twitch Channel. This will be a time for us to get together and be open about the things we are dealing with in regards to some usually taboo topics, such as addiction, mental illness, and disabilities (visible or otherwise). We're going to hang … Continue reading “Group Therapy” Streams Coming Soon
Let’s talk about clinical depression.
CONTENT WARNING; Heads up. I'm about to discuss some heavy stuff in this article, namely disability, depression, and suicidal thoughts. I am not at risk of self harm now, but I'm finally ready to discuss my fight with clinical depression. If you would rather not read about that, this is not the article for you. … Continue reading Let’s talk about clinical depression.
That much anticipated life update
Hello all! Thanks for bearing with me while I found the time to sit down and write this. Luckily for me, I've had some good energy lately here and there. Luckily for this article, I'm currently having a low energy day so it's forcing me to sit down. I'm feeling inspiration to write today, so … Continue reading That much anticipated life update
Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
Spoonie flash game idea! (updated 1/11)
I have an idea for a browser-based spoonie flash game. I'm going to lean how to use Adobe Animate to make it, and I have a basic concept for the game, but I would really love to get some feedback and suggestions from my fellow spoonies. The point of this game is to help people … Continue reading Spoonie flash game idea! (updated 1/11)
“SO, when are you going to have kids?”
I don't normally do this on my blog, but for this particular subject, I will add a content warning: - infertility - suicidal thoughts - societal gender roles If these topics are triggering to you, please do not read this article. I decided to write this after watching this wonderful TED Talk. Please take … Continue reading “SO, when are you going to have kids?”
Insomnia Doodles 