Living with secondary adrenal insufficiency is a constant balancing act—between doing what’s right, managing daily responsibilities, and keeping myself healthy enough to stay out of crisis mode. My experience with Mooch highlighted how quickly things can spiral when life throws a curveball. While I don’t regret helping him, it reminded me of the razor-thin margin of stability I often operate within.
panhypopituitarism
Mind Reading at McDonald’s
There I was deep in my cognitive distortion certain that people in the room were making such negative judgements about me, when in reality while I was struggling with those thoughts, there was a very sweet little girl telling her mom that she thought I was beautiful.
When your physical symptoms are mistaken as character flaws
My hope in writing this is to raise awareness for what can happen when a child’s illness is not taken into consideration when they are struggling. Your “lazy” kid might be experiencing physical symptoms. Your “unmotivated” high schooler who keeps falling asleep in class might be struggling with intense fatigue.
VR Spoonies Chronic Illness & Disability Support Group Celebrates 3rd Anniversary
Three years ago today, I hosted the very first meeting for what is now a really tight-knit, wonderful community of folks with a wide variety of conditions which impact day-to-day functionality.
Chronic Illness: What I’ve learned, un-learned, and am still learning
Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep … Continue reading Chronic Illness: What I’ve learned, un-learned, and am still learning
What PE taught me about my Rare Disease
https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact … Continue reading What PE taught me about my Rare Disease
Site Changes and Life Updates
It's been quite a while since I've published a new article here! There are many reasons for that, from a long period of extended illness (which seems to be getting under control now thanks to a change in my treatment) to sudden and very exciting new life changes that I am eager to share with … Continue reading Site Changes and Life Updates
When chronic illness makes you gaslight yourself
When someone breaks their arm, they can easily look down and see that it's broken. Reassurance that the pain and discomfort they are feeling isn't just in their head is constantly there if they just look at their mangled limb. Yep, there's my cast. I saw the X-Ray, my arm is in really bad shape. … Continue reading When chronic illness makes you gaslight yourself
Life updates ahoy! (+”Subtember”)
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
Upcoming Rare Disease Awareness Stream
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
Insomnia Doodles 