https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact … Continue reading What PE taught me about my Rare Disease
panhypopituitarism
Site Changes and Life Updates
It's been quite a while since I've published a new article here! There are many reasons for that, from a long period of extended illness (which seems to be getting under control now thanks to a change in my treatment) to sudden and very exciting new life changes that I am eager to share with … Continue reading Site Changes and Life Updates
When chronic illness makes you gaslight yourself
When someone breaks their arm, they can easily look down and see that it's broken. Reassurance that the pain and discomfort they are feeling isn't just in their head is constantly there if they just look at their mangled limb. Yep, there's my cast. I saw the X-Ray, my arm is in really bad shape. … Continue reading When chronic illness makes you gaslight yourself
Life updates ahoy! (+”Subtember”)
It has been a hectic past few months. H E C T I C . I was transitioned from the Healthy Indiana Plan (HIP) version of Medicaid to Traditional Medicaid, and the change created some chaos with the coverage of one of my important medications, Growth Hormone. I am GH deficient (among other things), so I … Continue reading Life updates ahoy! (+”Subtember”)
Upcoming Rare Disease Awareness Stream
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
Learning to enjoy life with a Disability
I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
Why I decided to celebrate winning my disability hearing by going bowling:
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Adrenal Crisis #3
"Buddy, I’m not trying to be better than you at your job. I was just trying not to die."
Rare Disease Day 2019
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019
Setting goals for 2019
It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019
