I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
panhypopituitarism
Why I decided to celebrate winning my disability hearing by going bowling:
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Adrenal Crisis #3
"Buddy, I’m not trying to be better than you at your job. I was just trying not to die."
Rare Disease Day 2019
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019
Setting goals for 2019
It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019
The Abortion Debate
There is a lot of discourse online about abortion access. I have been doing my damndest not to get involved, but it’s getting so hard seeing people that I know and love making terribly ignorant comments and completely demonizing women who needed to have abortions done. A year or so ago, I wanted to kill … Continue reading The Abortion Debate
My Disability Hearing
Yesterday was one of my most stressful days in a very long time, but it was also a day filled with the joy of relief that the hearing was over, no longer looming over my head with fears that I might somehow ruin everything I have been working for over the last year and a … Continue reading My Disability Hearing
Take a peek into my life (with pictures!)
I take for granted the fact that normally healthy people never really get to experience what it's like to manage a chronic illness, mainly because those of us who are chronically ill tend to hide our bad days. I don't want anyone to see me struggling- I'm afraid of worrying people, or looking like I'm … Continue reading Take a peek into my life (with pictures!)
Breakdown and a Revelation
I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I … Continue reading Breakdown and a Revelation
Why I choose to fight ignorance with patience
I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic … Continue reading Why I choose to fight ignorance with patience
