Puppies. ❤ They are adorable, entertaining, and in this case, intelligent, balls of energy. They can also grow up to be the perfect service dog and companion, under the right circumstances. That was my hope when Justin and I adopted Kubrow, a 9 week-old pure-blooded German Shepherd puppy, last Friday. His boss at work told him … Continue reading I tried. (Puppy love VS Chronic Illness)
panhypopituitarism
I am Disabled
Up until about a year or so ago, I didn’t call myself “disabled”. There was a stigma attached to that word that made me uncomfortable, so I avoided it. I think the thing that bothered me most, is I didn’t feel like I was qualified for the term, if that makes any sense. When I … Continue reading I am Disabled
How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to … Continue reading How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
Attention Parents with Disabilities:
Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing … Continue reading Attention Parents with Disabilities:
A quick rundown of my diagnoses / disabilities
Septo-Optic Dysplasia (SOD) Which caused: - Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism-Hypogonadism-Adult Growth Hormone Deficiency-Secondary Adrenal Insufficiency - Optic Nerve Hypoplasia Causing partial blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision)-Double Nystagmus (which moves at different speeds at different directions)-Overall low vision - Absence of Septum Pellucidum Here are … Continue reading A quick rundown of my diagnoses / disabilities
That much anticipated life update
Hello all! Thanks for bearing with me while I found the time to sit down and write this. Luckily for me, I've had some good energy lately here and there. Luckily for this article, I'm currently having a low energy day so it's forcing me to sit down. I'm feeling inspiration to write today, so … Continue reading That much anticipated life update
Ambitions
This is just a short life update. I am still planning on sitting down and writing a post about everything that has been going on with me lately, but that one in particular is going to take a couple of hours to write. Please bear with me until I can find the time! I’m actually … Continue reading Ambitions
Adrenal Crisis Update
Before I get into this update post, I want to apologize for my absence. My health took a turn after that adrenal crisis I wrote about in my previous article. It has been difficult to keep on top of things. I did get to go on vacation with my dad for a week, which turned … Continue reading Adrenal Crisis Update
Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
The guilt of feeling well
The title of this article might seem absurd to most people, but those of us living with chronic illness won't even do a double-take. Generally, people have good health that is consistent day-to-day, save for the occasional cold or flu, so this isn't something most people even think to consider. It's hard for most people … Continue reading The guilt of feeling well
Insomnia Doodles 