It's that time of year again! Every year on Rare Disease Day, I host a special live stream on Twitch to raise awareness of rare diseases and encourage everyone to donate to any of the wonderful charities out there making a difference in the lives of folks living with rare diseases! I'm planning on going … Continue reading Rare Disease Day 2024
rare disease day
Rare Disease Day 2020
February 29th, the most rare day on the calendar, is Rare Disease Day! This is an internationally recognized day dedicated to spreading awareness of the existence of rare disorders as well as an opportunity to learn about and support legislation that will help those affected by them. Every year, I host events online on the … Continue reading Rare Disease Day 2020
Rare Disease Day 2019
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019
Insomnia Doodles 