It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019
septo optic dysplasia
My Disability Hearing
Yesterday was one of my most stressful days in a very long time, but it was also a day filled with the joy of relief that the hearing was over, no longer looming over my head with fears that I might somehow ruin everything I have been working for over the last year and a … Continue reading My Disability Hearing
Breakdown and a Revelation
I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I … Continue reading Breakdown and a Revelation
How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to … Continue reading How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
A quick rundown of my diagnoses / disabilities
Septo-Optic Dysplasia (SOD) Which caused: - Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism -Hypogonadism -Adult Growth Hormone Deficiency -Secondary Adrenal Insufficiency - Optic Nerve Hypoplasia Causing legal blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision) -Double Nystagmus (which moves at different speeds at different directions) -Overall low vision - Absence … Continue reading A quick rundown of my diagnoses / disabilities
Adrenal Crisis Update
Before I get into this update post, I want to apologize for my absence. My health took a turn after that adrenal crisis I wrote about in my previous article. It has been difficult to keep on top of things. I did get to go on vacation with my dad for a week, which turned … Continue reading Adrenal Crisis Update
Yes, there IS a difference between ONH and SOD.
I have been confused by this for a very long time. Some credible online resources claim that Optic Nerve Hypoplasia (ONH), and Septo-Optic Dysplasia (SOD) are the same thing. I went on thinking that was true for the longest time, until I dug a little deeper and learned that there is, in fact, a difference.
My brain (SOD/ONH +Panhypopituitarism) VS a normal brain MRI!
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Panhypopituitarism SOD/ONH updates
I know it has been forever since my last detailed health update, so I decided to get you guys all caught up on what has been going on over the last year or so.
Chronic Illness Stories: Tales from High School and a message to teachers
This is my first blog post here regarding my life with chronic illness. I have a congenital condition called "Panhypopituitarism". Don't know what that is? I'm not surprised, it's very rare. That's why I made this short video explaining it. If you went to high school with me, you probably know I was on the … Continue reading Chronic Illness Stories: Tales from High School and a message to teachers
