There I was deep in my cognitive distortion certain that people in the room were making such negative judgements about me, when in reality while I was struggling with those thoughts, there was a very sweet little girl telling her mom that she thought I was beautiful.
spoonie
When your physical symptoms are mistaken as character flaws
My hope in writing this is to raise awareness for what can happen when a child’s illness is not taken into consideration when they are struggling. Your “lazy” kid might be experiencing physical symptoms. Your “unmotivated” high schooler who keeps falling asleep in class might be struggling with intense fatigue.
Rare Disease Day 2023
It's that time of year again! As always, I get REALLY into #RareDiseaseDay festivities all throughout the month, culminating in a big charity event on Rare Disease Day, which falls on the last day of February. I'm excited to share that not only am I doing the usual Rare Disease Day charity stream on my … Continue reading Rare Disease Day 2023
Chronic Illness: What I’ve learned, un-learned, and am still learning
Visually impaired like me? I've got you- here's the audio recording of this article: https://soundcloud.com/sunny-ammerman/article-transcription-chronic-illness-what-ive-learned-un-learned-and-am-still-learning?si=893062727ce244f3a04e038368c94561&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing It's been such a long time, but I'm back! I really miss blogging. I think it's time I made it a habit again. A lot has happened since I was last posting actively here. I'll try my best to keep … Continue reading Chronic Illness: What I’ve learned, un-learned, and am still learning
What PE taught me about my Rare Disease
https://soundcloud.com/sunny-ammerman/what-pe-taught-me-about-my-rare-disease I had originally planned for this article to be about my history of failing Physical Education (PE) classes. I suspected that because I was not properly educated on the health issues caused by my rare disease at the time, and had an inability to exercise like my peers, that this had a negative impact … Continue reading What PE taught me about my Rare Disease
Site Changes and Life Updates
It's been quite a while since I've published a new article here! There are many reasons for that, from a long period of extended illness (which seems to be getting under control now thanks to a change in my treatment) to sudden and very exciting new life changes that I am eager to share with … Continue reading Site Changes and Life Updates
Upcoming Rare Disease Awareness Stream
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
New painting, “Chronic”, playfully showcases life with chronic illness
I completed a new painting today. I used a combination of watercolor, acrylics, and oil markers on a 24x48" wrapped canvas. It will be on display at the Whitewater Valley Arts Association's regional show this May. I have not decided yet whether or not I will be selling it. This is a commentary on what … Continue reading New painting, “Chronic”, playfully showcases life with chronic illness
Boycott The Mighty
Up until now, there were no sponsored posts or advertisements that made them any money off of my stories. Now it looks like that is changing, and I feel betrayed.
Why I decided to celebrate winning my disability hearing by going bowling:
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
Insomnia Doodles 