Rare Disease Day 2019

Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019

Crossing Your Bridge: The difference between defeatism and realism

A sign on a bridge says that it can hold two tons of weight. If the bridge builder tells you you can not drive a three ton vehicle across it, he is not being a defeatist, he is admitting that the bridge has limits and he is protecting it from being destroyed. I think that … Continue reading Crossing Your Bridge: The difference between defeatism and realism