I am writing to you now because I have experienced some distressing hardships due to the Indiana Medicaid office’s poor handling of my healthcare needs.
🚨 Stream Announcement 🚨I’m always cautious about making plans to schedule a stream because my body likes to be as spontaneous as I am 🤣 but I wanted to give you guys a heads up that a couple friends and I are planning on having a special rare disease awareness stream on August 14th starting … Continue reading Upcoming Rare Disease Awareness Stream
I haven't written an article in quite some time. I'll be honest, I've been grappling with something since I won my disability case. After the initial feelings of overwhelming relief started to wear off, I realized that I could now fully accept my status as a disabled individual and move on with my life. With … Continue reading Learning to enjoy life with a Disability
I completed a new painting today. I used a combination of watercolor, acrylics, and oil markers on a 24x48" wrapped canvas. It will be on display at the Whitewater Valley Arts Association's regional show this May. I have not decided yet whether or not I will be selling it. This is a commentary on what … Continue reading New painting, “Chronic”, playfully showcases life with chronic illness
Up until now, there were no sponsored posts or advertisements that made them any money off of my stories. Now it looks like that is changing, and I feel betrayed.
Adrenal Insufficiency United has named April as Adrenal Insufficiency Awareness month. In honor of that, I’ll share some facts about my condition, Secondary Adrenal Insufficiency (SAI): 🔹My SAI was caused by my congenital panhypopituitarism. Basically, my pituitary gland does not function sufficiently enough for survival without assistance. This means my Adrenal glands do not receive … Continue reading Adrenal Insufficiency Awareness Month
“I felt guilty because I myself have been exposed to the (incorrect, mind you) preconceived notion that if I can not work, I should not be able to do anything physical, ever.”
"Buddy, I’m not trying to be better than you at your job. I was just trying not to die."
Today is Rare Disease Day! The theme for this year is #ShowYourStripes, which I love because of its reference to the term “zebra”, which many of us with rare disorders call ourselves. This comes from the old phrase physicians turn to when dealing with patients; “when you hear hoofprints, think ‘horse’, not ‘zebra’.” This mindset (while reasonable) … Continue reading Rare Disease Day 2019
It may seem a little silly for someone who struggles with a disability to "set goals". I think that for the most part, society expects disabled individuals to just sit at home and do nothing. They can't work. They can't do the same things neurotypical folks can do, so why would they focus on setting … Continue reading Setting goals for 2019