A quick rundown of my diagnoses / disabilities

Septo-Optic Dysplasia (SOD) Which caused: -  Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism -Hypogonadism -Adult Growth Hormone Deficiency -Secondary Adrenal Insufficiency -  Optic Nerve Hypoplasia Causing legal blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision) -Double Nystagmus (which moves at different speeds at different directions) -Overall low vision -  Absence … Continue reading A quick rundown of my diagnoses / disabilities

Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.

I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.

We need to break the social stigma of chronic invisible illness.

Chronic invisible illness can be a major pain in the butt, but some of the hardest parts of having such a condition is the look we get when we admit that our health is poor when we look outwardly healthy. You know what I'm talking about, the furrowed eyebrows, look of shock, the occasional narrowing … Continue reading We need to break the social stigma of chronic invisible illness.