I take for granted the fact that normally healthy people never really get to experience what it's like to manage a chronic illness, mainly because those of us who are chronically ill tend to hide our bad days. I don't want anyone to see me struggling- I'm afraid of worrying people, or looking like I'm … Continue reading Take a peek into my life (with pictures!)
I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I … Continue reading Breakdown and a Revelation
I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic … Continue reading Why I choose to fight ignorance with patience
Puppies. ❤ They are adorable, entertaining, and in this case, intelligent, balls of energy. They can also grow up to be the perfect service dog and companion, under the right circumstances. That was my hope when Justin and I adopted Kubrow, a 9 week-old pure-blooded German Shepherd puppy, last Friday. His boss at work told him … Continue reading I tried. (Puppy love VS Chronic Illness)
Up until about a year or so ago, I didn’t call myself “disabled”. There was a stigma attached to that word that made me uncomfortable, so I avoided it. I think the thing that bothered me most, is I didn’t feel like I was qualified for the term, if that makes any sense. When I … Continue reading I am Disabled
In my stream today, somebody asked a question that I thought might be interesting to share here as well. "Does your condition make it difficult to play fast-paced games like Warframe?"- WarLochNess Yes. It. Friggin. Does. I explain it more in-depth in the video, but here's the tl;dr: My eyes take a long time to … Continue reading How Optic Nerve Hypoplasia (ONH) affects my ability to play video games
Foster Moms and Dads- Can we talk about something kinda heavy really quick? I really want to adopt eventually. Justin does, too. We can’t have children of our own because my health is too poor for me to become pregnant. I love kids, and I think Justin and I will be excellent parents. The thing … Continue reading Attention Parents with Disabilities:
This is a throwback to an older article I wrote, titled "The guilt of feeling well". I wrote that a long while back, yet the topic is still quite relevant to me. Today, I had a really great day, energy-wise. I did so much, and as I sit here writing this, I still feel vital … Continue reading It has been an awesome day, and that sucks.
Septo-Optic Dysplasia (SOD) Which caused: - Panhypopituitarism (PHP) I'm being treated for the following deficiencies caused by PHP: -Hypothyroidism -Hypogonadism -Adult Growth Hormone Deficiency -Secondary Adrenal Insufficiency - Optic Nerve Hypoplasia Causing legal blindness due to: -Bitemporal Hemianopsia (complete loss of peripheral vision) -Double Nystagmus (which moves at different speeds at different directions) -Overall low vision - Absence … Continue reading A quick rundown of my diagnoses / disabilities
CONTENT WARNING; Heads up. I'm about to discuss some heavy stuff in this article, namely disability, depression, and suicidal thoughts. I am not at risk of self harm now, but I'm finally ready to discuss my fight with clinical depression. If you would rather not read about that, this is not the article for you. … Continue reading Let’s talk about clinical depression.