Support groups on social media can be an important source of comfort when you are living with a chronic health condition that affects your life in ways that normally healthy people might not be able to understand. When you are able to find a community of people who share your frustrations and offer helpful advice … Continue reading We need to stop comparing our hardships.
Chronic Illness
We need to break the social stigma of chronic invisible illness.
Chronic invisible illness can be a major pain in the butt, but some of the hardest parts of having such a condition is the look we get when we admit that our health is poor when we look outwardly healthy. You know what I'm talking about, the furrowed eyebrows, look of shock, the occasional narrowing … Continue reading We need to break the social stigma of chronic invisible illness.
Crossing Your Bridge: The difference between defeatism and realism
A sign on a bridge says that it can hold two tons of weight. If the bridge builder tells you you can not drive a three ton vehicle across it, he is not being a defeatist, he is admitting that the bridge has limits and he is protecting it from being destroyed. I think that … Continue reading Crossing Your Bridge: The difference between defeatism and realism
The guilt of feeling well
The title of this article might seem absurd to most people, but those of us living with chronic illness won't even do a double-take. Generally, people have good health that is consistent day-to-day, save for the occasional cold or flu, so this isn't something most people even think to consider. It's hard for most people … Continue reading The guilt of feeling well
From part-time employee to full-time patient: Losing a job due to chronic illness
I often find myself referencing the time I spent trying to work despite the complications caused by my Panhypopituitarism, so I decided I should probably dedicate a post to it, that way I can insert a link for reference rather than making every post referencing it unnecessarily long. *** Heads up- I do utilize some … Continue reading From part-time employee to full-time patient: Losing a job due to chronic illness
The Difference between ONH and SOD
I have been confused by this for a very long time. Some credible online resources claim that Optic Nerve Hypoplasia (ONH), and Septo-Optic Dysplasia (SOD) are the same thing. I went on thinking that was true for the longest time, until I dug a little deeper and learned that there is, in fact, a difference.
Panhypopituitarism SOD/ONH updates
I know it has been forever since my last detailed health update, so I decided to get you guys all caught up on what has been going on over the last year or so.
Now hiring full-time employees: No pay, no benefits.
Now hiring full-time employees; You will be expected to make regular appointments with clients, and keep up with them often. Additionally, you must follow a strict daily routine if you want to work efficiently. Even then, there is a chance your daily workflow may be interrupted by sudden unexpected changes, so you must be able … Continue reading Now hiring full-time employees: No pay, no benefits.
Chronic Illness Stories: Tales from High School and a message to teachers
This is my first blog post here regarding my life with chronic illness. I have a congenital condition called "Panhypopituitarism". Don't know what that is? I'm not surprised, it's very rare. That's why I made this short video explaining it. If you went to high school with me, you probably know I was on the … Continue reading Chronic Illness Stories: Tales from High School and a message to teachers
Insomnia Doodles 