I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic … Continue reading Why I choose to fight ignorance with patience
I have written an update to this post on 8/23/2018. I am not going to name the hospital I went to in this article. My intention is not to shame this particular hospital for how they handled the situation that I am about to describe, but to share my experience personally. There are many stories … Continue reading Dismissed and in Crisis: When an ER turns away patients with Adrenal Crisis, they risk lives.
A sign on a bridge says that it can hold two tons of weight. If the bridge builder tells you you can not drive a three ton vehicle across it, he is not being a defeatist, he is admitting that the bridge has limits and he is protecting it from being destroyed. I think that … Continue reading Crossing Your Bridge: The difference between defeatism and realism
Now hiring full-time employees; You will be expected to make regular appointments with clients, and keep up with them often. Additionally, you must follow a strict daily routine if you want to work efficiently. Even then, there is a chance your daily workflow may be interrupted by sudden unexpected changes, so you must be able … Continue reading Now hiring full-time employees: No pay, no benefits.
This is my first blog post here regarding my life with chronic illness. I have a congenital condition called "Panhypopituitarism". Don't know what that is? I'm not surprised, it's very rare. That's why I made this short video explaining it. If you went to high school with me, you probably know I was on the … Continue reading Chronic Illness Stories: Tales from High School and a message to teachers