Yesterday was one of my most stressful days in a very long time, but it was also a day filled with the joy of relief that the hearing was over, no longer looming over my head with fears that I might somehow ruin everything I have been working for over the last year and a … Continue reading My Disability Hearing
rare disease
Breakdown and a Revelation
I recently came to a revelation. I have known for a long time now that I am disabled, and because of this, I am unable to work. I tried to work twice, and both times, I had to quit because of my poor health. The second time, I wound up in the hospital and I … Continue reading Breakdown and a Revelation
Why I choose to fight ignorance with patience
I've been a chronic illness advocate for quite a while now, and along the way I have encountered a wide variety of folks from all different backgrounds and levels of understanding about what it's like to be chronically ill or to live with a disability. Along the way, I have made connections with other chronic … Continue reading Why I choose to fight ignorance with patience
Ambitions
This is just a short life update. I am still planning on sitting down and writing a post about everything that has been going on with me lately, but that one in particular is going to take a couple of hours to write. Please bear with me until I can find the time! I’m actually … Continue reading Ambitions
Crossing Your Bridge: The difference between defeatism and realism
A sign on a bridge says that it can hold two tons of weight. If the bridge builder tells you you can not drive a three ton vehicle across it, he is not being a defeatist, he is admitting that the bridge has limits and he is protecting it from being destroyed. I think that … Continue reading Crossing Your Bridge: The difference between defeatism and realism
From part-time employee to full-time patient: Losing a job due to chronic illness
I often find myself referencing the time I spent trying to work despite the complications caused by my Panhypopituitarism, so I decided I should probably dedicate a post to it, that way I can insert a link for reference rather than making every post referencing it unnecessarily long. *** Heads up- I do utilize some … Continue reading From part-time employee to full-time patient: Losing a job due to chronic illness
Now hiring full-time employees: No pay, no benefits.
Now hiring full-time employees; You will be expected to make regular appointments with clients, and keep up with them often. Additionally, you must follow a strict daily routine if you want to work efficiently. Even then, there is a chance your daily workflow may be interrupted by sudden unexpected changes, so you must be able … Continue reading Now hiring full-time employees: No pay, no benefits.
Chronic Illness Stories: Tales from High School and a message to teachers
This is my first blog post here regarding my life with chronic illness. I have a congenital condition called "Panhypopituitarism". Don't know what that is? I'm not surprised, it's very rare. That's why I made this short video explaining it. If you went to high school with me, you probably know I was on the … Continue reading Chronic Illness Stories: Tales from High School and a message to teachers